Thank you for helping me reach my Walk to Defeat ALS® fundraising goal!
Our family has been tragically affected with this dreaded disease.
As many of you know, my father Rev., Robert Lail Jr. died of ALS in 1967 at the young age of 41. My older brother Joe died in 2018 with FTD, a related form of motor neuron disease, at the age of 66. Then, last March my youngest brother Ted passed away from ALS as well just after his 60th birthday, 6 months after his diagnosis! Obviously our family has the genetic form of ALS, called familial ALS (FALS) which means that I and my siblings and our children live under the threat of ALS as well! We all have a vested interest in finding a cure for ALS.
So our family and friends will be walking for a cure again this year, on May 21st.
We're asking for you to consider contributing to this walk and our team's goal and walking with us as well! Our team name is the same as last years': Lails Stand Strong.
Below is essential information about ALS from The ALS Foundation:
The Walk to Defeat ALS® raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.