As we all know, life throws curve balls and did it ever throw us one when we learned of Jack's diagnosis of ALS on December 29, 2022. That date will forever live in our minds as the day life changed for the Hansons and our family and friends. Now into our second year of living with ALS, I'm happy to report we are managing and adapting to the changes ALS brings along with the double diagnosis of FTD (frontal temporal dementia) which often goes hand in hand with ALS. Jack is in fairly early stages with unsteady walking, fatigue and fading memory. We are content with our simple life and Jack is very agreeable with the many appointments and therapies provided to maintain as much quality of life as possible.
We couldn't do this without the support of ALS Northwest which has been by our side constantly. They work closely with the ALS Clinic in Bend where we are cared for by a team of 7 including a neurologist, physical therapist, speech therapist, respiratory therapist, nutritionist, palliative care team and Christina, our care coordinator with ALS Northwest. She is readily available to help with resources, patient and caregiver support along with medical equipment from the loan closet which has provided a walker, wheelchair, shower chair, grab bars with more to come as needed. The amount of support is truly amazing, including grants to cover expenses and medications.
And we are so grateful for the the support and concern you have all shown us by being listening ears, Jack sitters and faithful companions.
So, if you would enjoy donating to the ALS Association to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure, this is an easy opportunity. Please don't feel obligated. The choice is totally yours.
Amyotrophic lateral sclerosis (ALS) is a progressive, terminal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. ALS can strike anyone, and presently there is no known cause or cure.
That’s why we are walking in Bend on April 28. Jack wants to live as healthy and active as long as possible which would not be possible without the support we are receiving from ALS Northwest and the ALS Clinic.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
Thank you for any donation you would like to make. With your help, we will be able to make a difference in the lives of people affected by this disease.
With so much gratitude for all of you, Jack and Beth