Thank you for helping me reach my Walk to Defeat ALS® fundraising goal! The Walk to Defeat ALS® raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
My best friend, Andrea Schaaf, was diagnosed in 2021 with the SOD1 mutation and not even a year later succumbed to this disease. I wish everyday that no one else has to go through this- to feel helpless in the face of this disease. I hope we can raise money and awareness so that there can at least be more affordable treatments made available to slow the progress of this disease and to eventually find a cure.
Please WALK with me, if you can! I can think of no better way to honor Andrea's spirit than coming together for a fun activity that also does good in the world. Please DONATE as much as you can- a little or a lot, it will make a difference to those suffering with this disease and their friends and families, who are often caretakers.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.