I find myself at a place in my life where I know not one person with ALS, but three— Malcolm Fylan, my former student and longtime friend who died in November of 2023; Jerry Landreth, who was on our staff at Sacramento School, and my new friend, Deana Reed, who I have gotten to know in the past year.
Once again, I am asking you to open your wallet, pull out your credit card, or get out your cash… two dollars, or $20, or 2000… Whatever the amount, will make a huge difference. Thank you ahead of time for anything you donate.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.