Where the Dollars Go

Why Should You Give to ALS Northwest?

Everything we do advances the search for effective treatments and a cure for ALS.

We implement an integrated, multidisciplinary system of care services, public policy, advocacy and research funding. ALS Northwest is the only organization touching every area in a systematic way that is needed to defeat this unjust disease. Events like the Walk ALS event supports the following:

• 126 active research projects across the globe in 13 scientific focus areas
• 9 global strategic initiatives and 55 actively recruiting ALS clinical trials
• $89+ million dedicated to research since the ALS Ice Bucket Challenge to advance treatments and a cure.
• There are now 4 FDA approved drugs available to people with ALS to slow disease progression. Two of these medications just became available in 2023 due to the support and advocacy of our ALS community.
• On-staff Care Services Coordinators who offer individual support and home visits to assess needs, suggest equipment, connect with local resources and help families plan.
• ALS Northwest Certified Center of Excellence partnerships with Providence Brain & Spine Institute and the Portland VA Health System.
• ALS Northwest Clinic partnerships with OHSU, Kaiser Permanente, St. Charles Health System, The Center and Asante Health System.
• Medical Equipment Program in partnership with Numotion and Norco Medical to loan equipment to aid in daily living activities and with mobility.
• Augmentative Communication and Assistive Technology Program to support communication, access and technology needs.
• Grant Program that funds a myriad of reimbursable, ALS-related expenses such as respite care, counseling, co-pays for healthcare costs, home modifications, and more.
• Caregiver Support Program to provide family caregiver focused support groups, Care Connections guidance, and referrals.
• Monthly Support Group Program for people living with ALS, family members, and friends.
• Support and resources for children, in partnership with The Dougy Center, who have ALS in their families.
• Bereavement Support Program for family members and friends who have lost a loved one to ALS.
• Education and Outreach to health care professionals, home health care agencies and the community with updates on current ALS needs and solutions.