Where Does the Money Go?
Everything we do advances the search for effective treatments and a cure for ALS.
We implement an integrated, multidisciplinary system of care services, public policy, advocacy and research funding. The ALS Association is the only organization touching every area in a systematic way that is needed to defeat this unjust disease. Events like the Ride to Defeat ALS supports the following:
- 140 active research projects across the globe in 13 scientific focus areas
- 9 global strategic initiatives and 55 actively recruiting ALS clinical trials
- $89+ million dedicated to research since the ALS Ice Bucket Challenge to advance treatments and a cure
- 2 drugs available on the market with 2 potential new antisense drugs and numerous other drugs on the horizon aimed to slow or stop progression.
- On-staff Care Services Coordinators who offer individual support and home visits to assess needs, suggest equipment, connect with local resources and help families plan.
- ALS Association Certified Center of Excellence partnerships with Providence Brain & Spine Institute and the Portland VA Health System.
- ALS Association Clinic partnerships with OHSU, Kaiser Permanente, St. Charles Health System, The Center and Asante Health System.
- Medical Equipment Program in partnership with Numotion and Norco Medical to loan equipment to aid in daily living activities and with mobility.
- Augmentative Communication and Assistive Technology Program to support communication, access and technology needs.
- Chapter Grant Programthat funds a myriad of reimbursable, ALS-related expenses such as respite care, counseling, co-pays for healthcare costs, home modifications, and more.
- Caregiver Support Program to provide family caregiver focused support groups, Care Connections guidance, and referrals.
- Monthly Support Group Program for people living with ALS, family members, and friends.
- Support and resources for children, in partnership with The Dougy Center, who have ALS in their families.
- Bereavement Support Program for family members and friends who have lost a loved one to ALS.
- Education and Outreach to health care professionals, home health care agencies and the community with updates on current ALS needs and solutions.